FIRST is grateful to the Lennox Foundation for providing the necessary funds to launch and maintain this site.
The site is dedicated to the memory of Dane Christian Phelps, who passed away on June 25, 2008 at the tender age of three-and-a-half years old.
Dane had a very, very rare form of some unknown type of ichthyosis, which had never been officially diagnosed.
In addition to his ichthyosis, other medical complications caused his heart to enlarge and he suffered cardiac arrest.
He had a smile for everyone and loved so many.
Dane's parents, Suzanne and Eric Phelps, are members of FIRST
and were instrumental in providing FIRST with the opportunity to apply and ultimately receive the grant from the Lennox Foundation to fund this site.
Collectively, it is our hope that this telehealth site will provide much-needed guidance and medical help
to affected families who do not have access to experts in their local community.